Tuesday, May 21, 2013

In two weeks...

...we will be leaving for Florida for our final opinion with one of the top doctors in the world for PFFD and FH.  I'm excited but nervous at the same time.  We will get to meet many other kids and adults with Oscar's condition.  Oscar is a standing pro now and wants to run around with his brothers and sister and needs a helper leg to do so.  I have visited our local prosthetic and they are excited about making a leg for Oscar.  They will make a mold of his little leg and foot when we get back.  Regardless of what Oscar's options are, he will need a prothetic to get around in the meantime.  The prothetic place here even has an amputation playgroup for the kids!  Funny though, Oscar will be the only non-amputee in the amputation playgroup. 
Once we know what our options are in Florida we will come back home and make some hard decisions about what way we want to go with Oscar's care.  Oscar's case is too complicated for our local doctor, he would not do any surgery for Oscar and would leave him in a prosthetic for the rest of his life.  This would mean at adulthood he would have his adult sized foot at knee level and would complicate having a knee joint in a prothetic.  Shriner's offered a rotationplasty which involves turning the foot around backwards and using the ankle as a knee.  It's an amazing surgery but its a hard decision to make.  This would allow him to have a below knee prosthetic which would allow easier mobility.  If lengthening is an option, he would undergo many surgeries and sacrifice parts of his childhood recovering from surgery.  Not to mention all the travel back and fourth to Florida.  We are undecided as of yet what our decision will be but we feel we owe it to Oscar to know all possible options before making this life altering decision.  Please pray for us on our journey down to Florida this June 7th.  This will be highly emotional trip for our family but I know whatever the doctor says, Oscar will be ok.  He is healthy and happy and that is what matters most.  Oscar is blessed to have so many who care about him, one of which has overwhelmed us with her and her families thoughtfulness!

Here's a picture him "helping" with the dishes.  He climbed in there himself.


Even though he doesn't need it to stand sometimes we practice standing on blocks.  He's holding the remote, he's really good at changing channels!


Ten toes are overrated!  I love his both his little feet.


Great quote for Oscar!

www.facebook.com/oscarslittleleg